Beat Nb will once again will invade Falmouth August 18th to help save KIDS from cancer. This is our 8th year as an official charity partner of the Falmouth Road Race. Year one had ten brave souls running to Beat Nb and last year we had 125+ runners who raised nearly $200,000 to help save KIDS from cancer!
Neuroblastoma is an incredibly aggressive and deadly cancer. It is the most common cancer in infants and the average age at diagnosis is less than 3 years of age. Despite the most aggressive and harsh treatment imaginable the most at risk kids far too often relapse within 2 years of finishing therapy and once this cancer comes back there is no cure.
Our mission is to change that reality by dramatically altering survival in the short term while creating less toxic and more effective long term solutions. We have a collaborative team of 45+ children’s hospitals across the US that are ready to do just that – all they need is our support.
Please read my daughter Ashley's story below:
Ashley was diagnosed on August 27, 2010 at age 7 with Stage IV Neuroblastoma (a solid tumor cancer of the sympathetic nervous system) and later developed evidence of PTLD (Post-Transplant Lymphoproliferative Disorder/Non-Hodgkin’s Lymphoma). She battled through 7 rounds of chemotherapy, 13 surgical procedures, a stem cell transplant, 12 days of external beam radiation, two rounds of MIBG Therapy, 5 weeks in the Pediatric ICU receiving antibody infusions, numerous ER visits, over 50 blood and platelet transfusions, over 150 nights spent at the hospital, and an infinite number of pokes…..and all with a SMILE on her face. Her treatments required her to travel to 8 different hospitals in 5 different states, but it was worth it because in August 2012, she finally received the fantastic news that she was CANCER FREE!!! After this, she participated in a 2-year experimental drug trial with a drug called DFMO. The hope was that this drug would help her stay in remission and prevent a relapse and so far it has worked because she is now over six and a half years cancer-free!
Through this journey, our family realized the importance and great need for more pediatric cancer research funding. Our ultimate goal is to eliminate pediatric cancer through research!! I am proud to support this event and try to do my part in making a difference for kids like Ashley.
Thank you! ~ Hunter Burnette